Pustular Psoriasis

In 1997 I had a flair up of what the doctors at the time said was eczema on my foot. It turns out it was Palmoplantar pustular psoriasis. It took almost a year to clear it up with the creams that they gave me and TLC at home. Ten years later I went on a girl’s weekend vacation where I managed to get severely sunburnt all over. Not long after the sunburn healed, I developed the same type of “eczema” that I had had before. My PCM suggested I visit a dermatologist which I did and to my surprise, he said I had psoriasis.

Here I am, almost 9.5 years later and I still have it as bad as I did in the beginning. I have used every cream in their arsenal, taken methotrexate, even spent years on Humira, and it is still relentless.

There are days when every step I take is painful. There are also bad days when a step makes me want to recoil my foot from the floor. The intensity pain can become too much sometimes. Thankfully the days when it hurts to walk are the norm. Typically I have a built up of hard skin around the heel and on the bottom of it. Blisters litter the bottom of my feet and my toes. As the blisters dry up, they harden, flake, and leave tender skin behind. Have you ever burnt yourself sufficiently enough for it to blister up? If so the pressure that I feel is somewhat the same as a full blister from a burn, except it is in tiny blisters. Now, imagine hundreds of small blisters on one foot at the same time.

My hands are affected as well. Both my palms and fingers break out with blisters which then harden and flake, and most times crack. Often I have multiple sets of blisters which create a horrible effect. Stress, chemicals, and food seem to be my worst enemies. However, once I have a breakout, I become hyper sensitive until I clear up.

The typical cycle is redness, fever (localized), blister, blister shrinks, dried/hardens, dead skin, cracks, peels or flakes off leaving a tender very sensitive area. The cycle takes 5-7 days to complete. If at any time during those 5-7 days another breakout starts (new set of blisters) it means that they will become trapped under the dead skin of the first set. Now imagine putting on a rubber glove that is two or three sizes too small for you. The constriction you would feel is like the feeling of having more than one cycle of blisters at a time. There are times when I have had a new set show up every day. The skin on top is a sheet of hard dead skin that cracks, injuring the viable skin below. Trapped under the top layer of dead skin are layers of dry skin, blisters, and open wounds.

I know I can not be the only person out here going through this if you are experiencing something similar chime in below in the comments. I would love to hear your thoughts on how you cope with your psoriasis, what you do to keep it at bay, and what type you have.

Here is some information for you:

Palmoplantar pustular psoriasis. If you have pus-filled blisters on the palms of your hands and the soles of your feet, you likely have this form of the disease. It can return several times over months or years. It’s more common in women than men. Sometimes, it causes the joints or bones to become inflamed.

Acropustulosis. This rare form of the disease causes pus-filled blisters to form on the tips of your fingers and toes, often beneath the nails. It’s more likely to affect your fingers than toes, and it often happens after you get injured. The blisters can make your nails become deformed or fall off. In severe cases, the finger or toe bones may change shape or become deformed.

From http://www.webmd.com/skin-problems-and-treatments/psoriasis/pustular-psoriasis#2

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